Second trip to Palo Alto

Well I made it back. Mom, Dad, Grandma and Grampy Bert went with me. Everything went good, the pulmonologist there wants to start me on nebulizer in conjunction with my vest treatment. This won't happen until I go to Portland at the end of August. Then I have to go to Portland again in September and then back to Cali in October. I think they plan on doing a cardiac cath in October down there. Until then, I am just chilling, going rafting with mom, going to the beach, movies and the park. Well, love you all. Ayden

Long time coming...

Well, just to let everyone know, Ayden has officially been placed on a heart transplant list with Lucile Packard Children's Hospital in Palo Alto, CA. This means that at least Ayden, Jessica and I will be making a trip to Palo Alto every three months starting next month and a trip to Doernbechers in Portland every month in between the trips to California. The good news is that Ayden's antibody resistance is only 9% for class 1 and 2, so he can accept a heart from over 90% of the population, which will hopefully make it easier to find a donor. Wish us luck!