A little bit better, but not out of the woods yet!

So, I haven't written in a while and thats because the nurses and docs have been keeping me hopping. They've given me several types of diuretics, including diarill which works wonders on me. Since I have been getting that, I have been getting rid of fluid like it was nobody's business (except mine). After having a X-ray and a ultrasound done yesterday, Doctor Langley decided to put a chest tube in my left side because of a large effusion I had. They did it this morning and so far, I have had about 90 mls come out of it. Also I finally got to see big brother today for the first time since Friday of last week. Man I missed him. He was being his usual goofy self. I have been getting Ativan when I get cranky and that does wonders for my attitude. I was playing and kicking and smiling at Momma and Papa and Aunt Tricia tonight after getting that. I am looking forward to getting to see my grandmas this weekend. Overall I am better but not even close to going home. Well gotta go, Love Ayden

Doing ok, but more stuff to be done

Well, Monday night, Mom and the nurse gave me a bath, which made me feel better afterwards. I was the most active I had been since I was at home on Thursday. I was smiling and laughing at my goofball dad and kicking my feet and playing with my toys. They put me on a high flow nasal canula, which provides humidity to my nasal passages as well as O2. I was able to breathe easier after this and not have to work as hard, so I was less tired. This morning, they had to get blood, so I think between that and trying to get a IV started because the other one I had blew, I got poked at least 5 or 6 times. Then they tried to get a line in through my groin, which was a sterile procedure, but all that ended up being was a arterial line through my femoral artery. So it is good for blood draws, but no meds or other fluids through it. I was still in a good mood this morning because I got some much needed sleep last night. I also had another Cardiac Catheter done this afternoon. They were going in because I still have some narrowing in my Aortic arch and also what they call collateral blood vessels in my lungs. To fix these, they put tiny coils on them. I went in for this at 2:30 and did not get back from this until 11:00 last night. The first few hours was them getting a PICC IV started and giving me the drugs to put me under, so they could this. When I got back, the nurses gave me Morphine for the pain. Well I really need some sleep, so I will talk to later. Love Ayden.

Good mood, weird day.

So this morning, they did a X-ray like they always do. Well the results showed that the effusion on the left side was almost gone and that the right side had just a little bit. They decided to put a chest tube in anyways to get rid of the right effusion. Most of the liquid was gone due to them giving me extra Lasiks and a dose of another diuretic. My lungs still kind of looked patchy with fluid. They put in the tube and I was very unhappy for a while, but they gave me a little Morphine to calm me down. After that, I did ok most of the day. Later on, it looked like I was breathing pretty hard still. They had done a ultrasound and haven't got the results on that yet. They also did another X-ray and that looked great, just the stuff on my lungs. So I just need to get rid of the goo in my lungs and then I should be feeling alot better. Oh yeah and once they get rid of the tube too. Anyhow, time to get some more sleep. Love, Ayden.

Totally not wanting to be tubular!

So, they did an X-ray on Friday when we got here, and then did another one Saturday morning. The docs said they looked pretty much the same with only minor differences. Then I had a bad episode of respitory distress in the afternoon. It took me awhile to calm down and Mom and Dad were very scared. The docs did another X-ray and said that the effusion on my left side had gotten bigger, therefore they would have to ship us down to the PICU and have a chest tube put in. They were going to call in Dr. Langley but decided that I was not in dire need of the tube right away and that I was for the most part stable as far as my vital signs go. So they decided to wait till Sunday morning. If this works out, we should get moved back upstairs today, I think. Anyways, just thought I would let everyone know what was up. Love to everyone. Oh yeah and GO DUCKS!! (that was for Uncle Gary and Grandma Sam)

So much for a good Thanksgiving

Well, on Wednesday I started having breathing issues and so Mom and Dad were watching me carefully. On Thursday, Happy Thanksgiving, I did not get better. So Dad called Doernbecher's and talked to a doctor. We tried giving me a extra dose of Lasiks, which did not work. So then Mom and Dad and I took a trip to Mercy's ER and got a X-Ray. They also got a IV started and gave me Lasiks through that. They let us go home with the intent on us going to the Doctors in the morning. So this morning, Dad took me and the doc examined me and talked to the doctors at Doernbecher's. They decided that the best plan of action involved Mom and Dad and I hopping in the car and driving back to Portland, again!!!

So here I am, sitting a hospital room, with a IV in my right leg, and another pleural effusion (that's doctor talk for build up of fluid in my chest cavity) on my left side now. They are giving me IV Lasiks, and saline through the IV and also giving me Aldactone (another diuretic) and potassium orally, along with my acid reflux med and methadone. They hope that giving me the extra diuretics will get rid of the extra fluid in my chest and hopefully will prevent me from having to get a chest tube put in. If this works out, keep your fingers crossed that it does, I hope I won't be here for very long, but if history repeats itself, I will be sending pictures of me wearing a Santa hat to everyone. NOT!!! Anyways, once again, Mom and Dad have had to drop everything, like work, to deal with this. I want to thank both Grandma's for taking care of big brother and also being there for Mom and Dad! Anyhow, wish me luck and I will be home before you know it. Love, Ayden.

Home Sweet Home

Finally, after what seemed like forever, Mommy and I got home on Friday evening. So far, I have been doing really good with everything. I stay awake alot more, I am smiling and talking and playing with my toys alot, finally just getting to be somewhat of a normal little guy. The only cruddy thing is that everyone who wants to come see me has to get a flu shot on doctor's orders. I can't get sick at all. It would not be good. Anyhow, I am really tired and I am gonna hit the crib. Love ya all, Ayden

Droppin this place like a bad habit!!!

In the words of Jar-Jar Binks, "Weesa goin home!" Mommy and I are finally getting to go home. Did you know, by law, Mommy should have changed her address on her Driver's License because if you reside in one place for one month or more and it's different than whats on the license, you have to change it. But it is okay cause she knows a few cops. ;) Anyways, I am in the best mood that I have been in in a long time. I am on less meds than I was after my surgery and also after I got discharged on Friday. Anyways, I also have more tests and two doc appointments scheduled in the upcoming months, so I will be very busy. Well got to finish packing. Love you all and thanks for your help. Love Ayden

This is getting really old!

So, I got discharged like my last blog said. Dad and Big Brother show up on Friday night and I thought things would get better, but my body said otherwise. I was very grumpy and pukey all night, just ask Dad. He slept with me in one bed, so Mom could have a break. Saturday, I was pretty much the same. Nothing really made me happy, and Sunday, the same. I was somewhat better that night, due to getting some Pedialyte that Grandma Sam brought me. So Monday rolls around and we go in for the tests. My X-ray looked great, my blood work looked great, but the ECG worried them. Not anything to do with my heart or anything, but more with my blood vessels. So that along with my grumpiness over the weekend made them decide to admit me back in the hospital. At first, it was hopefully going to be for a 24 hour observation period, but now it sounds like it will be for a few days. They are taking me off all the diuretics, because they think I was getting to dehydrated and they also thought they were trying to ween me off of the Methadone to quickly. So once they have these problems figured out, hopefully that will be the ticket out of Portland. I think they should make a new Snake movie starring me, "Escape from Portland" I have the scars for the role already. Anyhow, wish me luck and thanks for all of your support. My whole family really appreciates it. Love Ayden.

Hopefully Home on Monday

Well the doctor came in today and told Mom that my X-ray looked good, and that I would be discharged. But because we live so far away, he wanted us to stick around through the weekend and re-evaluate me on Monday. So, when we do get discharged, Mom and I will stay in a hotel and Dad and Big Bro will come see us after he gets out of school. I am so looking forward to this, as is everyone else. I really miss being home. Well just thought I would let everyone know. I gotta go pack. Love Ayden

Good news!!!!

Well the last week has been stressful. There has been a lot of fine tuning going on and I think it has paid off. Today the doctors have removed the chest tube. This is a very big step. If there aren't any problems within the next couple of days I might be able to go home!!!!!! I am going to keep this update very short and not bore you with the painful details of this past week. I just wanted to share the good news. Love Ayden.

More good things than bad things

So they did the usual daily x-ray and my chest looked worse than yesterday. I had fairly good vitals all day, aside from the pesky annoyances. My absentee father showed up before noon and I treated him to my handsome face smiling within 5 minutes of him being here. I sure do miss him and big bro. They did a ultrasound of my chest today because of how my x-ray looked and on it there was a small pocket of fluid, so we thought that might mean another chest tube. After review, the ruling on the field was overturned and Dr. Langley said, "Read my lips-- No New Tube!" Now to the bad things. My central IV line is gone kaput and is also leaking. This is not good. Dr. Woodward came in and tried to get a periphal IV line twice, with no luck. Usually he is on the up and up. The PANDA team came in and was able to get one in my right arm. They even had good flowback from it and got the labs they needed from it. The docs are worried that I might have a blood infection, so they are doing a culture to find out and as a precaution, started me on two antibiotics. But for the most part, today was fairly good. I was in a fairly good mood, I smiled lots for Daddy, Mommy and Aunt Tricia, plus stuck my tongue out for her too. She likes it when I do that. I was awake for quite awhile today and now I am really tired, so I think I will hit the hay. Love Ayden

My first Halloween!

I am the most adorable pumpkin ever. Check out my fantastic pumpkin hat!!!! My Grandma Penny made me the hat and I am so adorable. I didn't get any candy this year but that's only cause I'm saving up for next year. All the nurses visited me and told me I was the best pumpkin they had ever seen. I wish I could have seen my big brother in his costume. He was a Clone Trooper from Star Wars. As you can tell I am a Star Wars fan. Well I wish that Halloween could have been fun. Unfortunately that night at 6pm they did a procedure called a cardiac catheter. It is a surgical procedure where they put cameras in major arteries and get a video of your heart and surrounding areas. They put whats called coils around two arteries in my lungs to hopefully relieve some pressure off that duct that seems to be leaking. It also will help create even better flow in my lungs. They're was a bit of a scare when I came back after the procedure (whats a good Halloween without a few scares) I developed a blood clot in my left leg and when my mom saw that my leg was purple she freaked out. It was okay though they gave me a blood thinner and things worked out. My leg looks fine and no clot. Well still working on the chest tube issue hope it gets better soon I really want to go home. Hope to see you all soon Love Ayden.

Can't Get A Break.

I was doing a lot better Tuesday when they changed my chest tube. Things were looking good the rest of that day. Wednesday morning rolled around and my chest tube was not producing anything yet again. Mom did not get excited this time instead she thought there was probably another clog. Well my breathing got worse through out the day and it felt like a bad case of deja vu. They checked my chest tube and said that I didn't have a clog. My x-ray showed a build up of fluid still on the right side but in a different location where the tube wasn't reaching. Apparently I developed a pocket and all the fluid was now building up in there. On Wednesday evening my breathing had got increasingly bad. At about 3am Thursday they finally moved us to the intensive care unit with a plan to put in a new chest tube. The surgeons were so busy today that I didn't get a new tube until 4pm. By that time I was pooped. Luckily I am a fighter and the only breathing assistance I needed was a high flow nasal cannula with some warm air and a little moisture. I have been doing better since they drained it. They removed 230ml from my chest. that is a lot of fluid for such a small guy. On a brighter note I did get to see my daddy. I missed him so much. He even got to hold me. I was a bit cranky but who can blame me. Well I'm a bit tired so I am going back to bed. I'll keep everyone posted. Love Ayden

I hate chest tubes :(

Well I had a really rough day today. It all started last night, my chest tube hadn't drained all day Monday. My mom was optomistic that maybe the IV meds were working and they might take the chest tube out and we could go home. Unfortunately late last night I started having trouble breathing. The doctors waited a long time before they got an x-ray it felt like forever. Finally after about twelve hours of very heavy breathing, which the doctors describe as equivalent to running a marathon,they replaced my chest tube. It had developed a huge clog. The doctors drained 150ml's from my chest. I started to breath a lot easier after that. Imagine running a marathon for twelve hours. I was very tired afterwards. I have been sleeping all day. This brings me to some more bad news. The IV meds have not worked therefor I am going to get a cardiac cath done and they are going to try and figure out if there is anything they can do inside to help me out. I am no longer aloud to eat anything they are stopping all traffic in my tummy. I am getting all my nutrition through the IV in my femoral artery. That was almost a problem today too. My IV, the only one I have, clotted and they couldnt get any blood from it. Luckely some very skilled nurses rethreaded it and got it functioning properly. Wow that was a lot of stress for my whole family. Speaking of family every one saw my super cute video taken by my beautifull aunt Tricia she is always very nice to me. I got a lot of visitors this last week it was great. I got to see my Grandma's and Grandpa's and my uncles and big brother too!!! I really miss daddy. He is comming to see me tommorrow that makes me very happy. I love my family so much...Hugs and Kisses. Love Ayden

Busy little Bee

Well I have been extremely busy this last week. I am still in the hospital and they are still trying to find a way to make me better again. When I got here last week they put a tube in my chest to drain off the fluid collecting around my right lung. I still have the tube in my chest and it is still draining fluid. Apparently during my last Open Heart Surgery there was a duct that was cut. This particular duct is attached to the stomach and all the fat that you eat gets sorted out, sent through this duct, then the fat gets dumped into your heart. Well the fat is the liquid that is pooling its self around my lungs. I am on my very first non-fat diet and guess what? It tastes gross. I still am having a lot of drainage so they have me on a medication that is going to restrict the flow through that duct. I hope it works. I had a few bad days they have had a really hard time getting an IV started and they ended up poking me over 23 times in a span of only 2 days. After that I had enough so they started whats called a central line. Its basically an IV in a major artery. They gave me some really good sedatives that day. Well its going to be a few more days until I find out if this stuff is working. I will have an echo cardiogram done on Monday and hopefully all is in good working order. If it is I get to go home. If not they are talking about doing an angioplasty and seeing if that relieves pressure off of that duct. I am so glad that every one is helping my mommy and daddy they look very stressed. I know that with all your thoughts and prayers that I am going to be out of here very soon. Thank you so much for everything. Love Ayden

Back in the Hospital!!!

Well, since Sunday, I have been really fussy and Mom and Dad have been very stressed out. Monday I was in a good mood all day and Tuesday I was so-so. Wednesday I was right back at the fussy stage again and I was having trouble breathing. Daddy decided to call Doernbechers and the doc there told him to take me to the emergency room in Roseburg and have them check my vitals and get a chest x-ray done. We did that and I had fluid in the right plural cavity behind my lung. Mercy called Doernbechers and told them and they wanted me up there ASAP. So I got to go in a another ambulance doing about 85-90 all the way to Portland. Dad and big brother were behind us most of the way. After they examined me, they decided to put in a chest tube to drain the fluid out. They did this and shortly after doing so, I had like a 130-140 ml come out. They said the stuff is basically just really thick breast milk, and this is actually pretty commom after the surgery I just had. As of right now, I am doing okay. They are starting me on a different formula, one that will not cause what happened to happen again. Anyways, so we are back up here again, hopefully only till Sunday. Well wish me luck and I will keep you updated. Love Ayden.

Such a big boy!

These accommodations are so spacious!This is way bigger than my last pad!
My first night in my new crib!


Well, I spent my first night in my crib last night and I did all right. I was fussy a couple of times, but the crib is at the foot of Mommy and Daddy's bed, so I am not that far away. I had a doctor's appointment today and I weighed almost 13 pounds. Mom and Dad don't have to weight me everyday like they used to, so we were curious as to how chunky I was. The doctor was very happy with how I was looking and doing though. I also have eaten from a bottle a few times now. I have not been doing this since earlier this summer. Mommy and Daddy are happy that I am trying again. Anyways, I gotta go watch the new Indy flick. Love you all, Ayden

Home at last!

Well I got to go home on Thursday. Boy were we glad. After being in Portland for 10 days, I wanted out of there. I got home, safe and sound, but with a slew of medicines to take. I also have a couple of doctor's appointments soon. When we got home, we had no heat, which sucked. Mom probably won't like me using that word, but oh well. Mom and I slept in Papa's recliner all night and Dad and big brother slept in Mom and Dad's bed because big brother's room was colder than the freezer. They got the heat fixed this morning so all is well. I probably won't leave the house for a few days, don't want to get sick and the weather has been really cold down here. Well I gotta go to bed. Love Ayden

Busy last 2 days

Well, Tuesday morning, I yanked out my NJ tube. The NJ stands for Naso-Jejunal or small bowel. I did have a NG tube which a Naso-Gastric or stomach. They reinserted another tube into my stomach and left it there. They also took me off the continuous feeds, which has helped big time with my uncomfortableness. I am back on the feeds I had before I had surgery and I am not having hardly any problems with gas and I have not spit up once, knock on wood. I am not hooked up to any monitors and I don't have any IV's. All my meds are through my tube, and I have been in a great mood. Yesterday, they did 2 X-rays, 2 ECG's and an EKG. I am going to be on some new meds for a little while, but other than that I feel good. Best of all, I may get to go home tomorrow. This makes everyone happy. I already have two doctor's appointments scheduled for after we get out of here. I have been smiling, laughing and cooing quite a bit and nowhere near as fussy. Mommy and Daddy are very happy with my condition. Well, gotta go, gotta get back to watching Iron Man. Love Ayden

Good and Bad Day

Well we'll start with the good news. I have been upgraded from the ecomony to the luxury suite i.e. from the PICU to the Inter. CU. I have a IV, my feed tube and the sensors for my heart rate and my Pulse Ox. That's it. Now the bad news, I had some fluid coming out of my right ear on Saturday, which filled my ear canal. The ear doc came and checked it and got me a prescription for ear drops. Today he cleaned out my ear and said that my ear drum is perforated near the bottom. He took a culture and hopefully I will get a antibiotic for it tomorrow or Wed. As of now, I am very grouchy and gassy and overall very unhappy. Mom and Dad don't know why, but are trying to help as best they can. Anyways, gotta go to bed, they got me scheduled for a diaper's load of tests tomorrow. Write me back if you read this and are thinking about me, I would love to hear from you. Love Ayden

Teeter-Totter Day

Well today kind of started out like Thursday did. I was really fidgety and could not get comfortable. It did not matter what they gave me, I would not sleep well. I was back on the nasal canula and they decided to put me on the CPAP machine. Well they were finally able to figure out what was wrong. I have a NJ tube, which instead of going to my stomach, it goes through it and into my intestine. They had me on 35ml feeds/hour and my body could not hold that in the intestinal tract. If it had been in my stomach, I would have been fine. So they got me back to 25ml/hour and I was fine after that. I had my chest tubes taken out today and also I am on room air, no canula or CPAP. They are also planning on taking out my Central line in my neck and just using an IV for me. Mommy got to hold me, for a while cause I got gas and then I felt better. I did finally go number 2, I haven't since Tuesday. That felt better. Anyways I will talk to you all later, Love Ayden.

Another good day!

I had another good day today. I am not taking too many medications for pain, just a little morphine. I had my catheter taken out, as well as one IV and one arterial line. I had my eyes open alot today and got to see some of my family. I sure do miss big brother. As of right now, I am off the CPAP machine and just on a O2 canula. They are talking about possibly taking out my chest tubes tomorrow. A bit of bad news though, I might have a middle ear infection. The doctor looked in my ear but could not see the ear drum, so they put me on drops and will check it on Monday. I also have been getting food, right now I am at 20ml per hour and the goal is 35mls. Well I am going to take a nap. Talk to you tomorrow. Love Ayden.

Much better day today

Today was much better. I was doing really good earlier this morning after they were able to calm me down. I was on the Ativan and Tylenol to calm me and the CPAP was at a 100%. As of now, I have not had any Ativan since this morning, Morphine since earlier this afternoon and my CPAP is at 45%. The nurse is still giving me Tylenol, but the main thing has been checking my lungs and sucking out all the stuff that is in them. I have only been irratible when she messes with me, other than that, I have slept all day peacefully, which I needed cause I was beat. This was good for Mom and Dad cause Mom did not sleep that good the first night and Dad has been up since 2:30 this morning. They did take naps later on which is good. Anyways not much else to report except that I am not on any other medicines, which is good. The doctors are happy with how I look and they should start my feeds back up soon. Well talk to you all later. Love Ayden

Hard First Day

Well, the first day after the surgery was a rough one. I was doing very good overnight and about 3:30am on Thursday, they decided to extubate me. This was good, because I was not happy with the tube shoved down my throat and being awake. After this, I did ok for a while, but then I got really restless and inconsolable. The staff told Mom and Dad that I would be this way but Mom was convinced that there was more to is than just that. They tried giving me Morphine and Tylenol, which did not calm me down. One time, I opened my eyes and was looking at Mommy and Daddy, for a good half a minute and then I just started crying. They tried alot of different things to calm me down. They tried to up the dosage of the Morphine, they rewrote the order so they could give it to me once an hour. They also tried Oxycodone, with no luck. They gave me another Diuretic, which was supposed to help get rid of the fluids in my abdomen, but that did not seem to be the problem. They also gave me Activan, which I had been on before when I left the hospital in May. This is not so much a pain killer as it is a relaxing medicine. This seemed to work. They also gave me hydro-chloride, which also is a pain killer too. The day nurse did not seem to think that anything was really wrong, which had Mommy pulling her hair out, but fortunately the night nurse is on her game. She agreed with Mommy that it looked like I was having trouble breathing, so they put the CPAP machine on me. They were possibly going to reintubate me but they gave me some time to see how I did on the CPAP and so far so good. I am doing fairly good right now. Well I have to go back to bed. If they ever found out I was out here typing away and not in bed, I'd be in big trouble. Love Ayden

Out of Surgery... So Far So Good

Well I am done with surgery and I already look better then I did with the first two. Not only did they do the Glenn, Dr. Langley also did a Aortic Patch, which is when they make an incision in the Aorta to widen the diameter and then put a patch over it to keep it open. This was kind of unexpected to Mom and Dad. They also thought that my tricuspid valve was leaking, but they figured out that it was not. They are hoping to have me extubated within 12 hours, which is awesome, but I will definetly not be happy when they do it because they have to wake me up. The nurse also said that I will probably have a wicked headache due to higher pressure to the head for a few days. This will also make me grumpy. But I am moving my right foot already, which is a good sign. I just hope we can go home sooner than last time. Well, I just want to thank all of you who were hoping and praying for me and after we are home and feeling better, we will have to see you all. Thanks again, Love Ayden

Warped Ken Doll

I know the title is kinda weird, but the reason is that my Mommy was putting clothes on me that were huge the other day, like she was playing dress up with me. I gotta admit, I did look dang cute though. Anyways, I just wanted to let everyone know how much it means to me and Mommy and Daddy and big brother that you all are thinking about me when my surgery is done next week. I have been staying steadily at over 12 pounds which is good and the doctors said that I will gain weight even quicker after the surgery. Before you know it, I be as big as my Uncle Garrett. ;0)Well I will talk to you later and we will keep the blog updated as much as possible next week. Love you all, Ayden

Another Surgery... Another Trip to Portland

Well here it is folks. The news everyone has been waiting for. I am scheduled to be in Portland on Tuesday the 30th for a sedated echo at 8am. Then the next day, I will have my surgery, mostly likely first thing in the morning. Remember this procedure is called the bi-directional Glenn procedure. Basically, what is done, is the BT Shunt will be removed. The doctors will connect the SVC (Superior Vena Cava) to the pulmonary arteries that go to the lungs from the heart. This will send all the blue (un-oxygenated)blood from the upper part of the body to the lungs without going through the heart. This will take a lot of the extra work my heart is doing off line. Right now, my heart is sending oxygenated blood to the body, and also sending the oygenated and un-oxygenated blood to the lungs. The other surgery that I will have later on (Fontan) will connect the IVC (inferior vena cava) to the pulmonary arteries, so all my heart will have to do after that is pump blood to rest of the body, nothing else. Recovery time is unknown, so we are hoping for the shortest time possible. Anyways, also I finally hit 12 pounds yesterday. This is good. I also learned how to blow raspberries. I am so cute! Well gotta go. Love, Ayden

Rocky Road... no not the ice cream!

I am doing better. Even though everything did not go the way we had hoped at the hospital, the doctor was happy with how everything looked. After I got home, I was kinda losing weight. I was still above 11 pounds but the fact that I was losing it was not a good thing. But I am doing awesome now. I have gained back the weight I lost and then some. I weigh 11 lbs, 13.5 oz. I am also not spitting up like I was before. I still do but only a little bit and it's once in a while. Usually it's because I get really snotty and congested because of the NG tube and I swallow the nasty and then hork it back up. I am also cooing alot. Mommy and Daddy call it talking. I also smile all the time and like to stick out my tongue and click it at you. Also I have to taste test everything I can get my hands on, oh yeah and those too. ;) But like I said, I feel better than I have in a while. Now we just need to get this other surgery out of the way and then I can start having more of a normal life. Well if you read this, please drop a line and say hi. Love Ayden

Well, Back in the so called saddle again!!

Today was the big day. Mom, Dad, big brother and I got to OHSU at the butt of dawn. We got checked in, and then had to go to the 11th floor. This was were the Cath Lab and recovery room was. I was in the lab from about 12:30 until after 5. Dr. Armsby was very happy with how my pressure & veins looked. Unfortunately, they can't use the left side of my heart, because it still just has not grown like it needed to. SO it looks like the next step is the Glenn procedure or stage two of the Norwood. The good thing about this is that it is not open heart surgery. They go in near my shoulder and don't have to open my sternum up again. Dr. Langley most likely will do this surgery also. This will probably be sometime next month they said. As of right now, I will probably be discharged tomorrow afternoon. Anyways, I am really tired and not happy that I am back in the hospital again, hence the title. Please leave a comment if you read this, I would love to hear from you. Love to all and thank you for the support, Ayden.

The size of a small compact car... Just joking!

Well as of yesterday, I hit the 11 pound mark. I still have two weeks until my procedure, so I will be well on my way to 12 pounds by then. I am just hangin out doin nothing else right now. I have a doc appointment on the 14th and I don't have to go to the docs every week anymore. There is a link to my newspaper article on Doernbecher's website. You can look at the doctor's bio on the Doernbecher website who will be doing my procedure on the 22nd. Her name is Dr. Armsby. Other than that, big brother's birthday is coming up at the end of the month. He will be the big 1-0. I love him very much and couldn't ask for a better big brother. Anyways, gotta go. I have to get my sleep on. Love you all, Ayden.