Rocky Road... no not the ice cream!

I am doing better. Even though everything did not go the way we had hoped at the hospital, the doctor was happy with how everything looked. After I got home, I was kinda losing weight. I was still above 11 pounds but the fact that I was losing it was not a good thing. But I am doing awesome now. I have gained back the weight I lost and then some. I weigh 11 lbs, 13.5 oz. I am also not spitting up like I was before. I still do but only a little bit and it's once in a while. Usually it's because I get really snotty and congested because of the NG tube and I swallow the nasty and then hork it back up. I am also cooing alot. Mommy and Daddy call it talking. I also smile all the time and like to stick out my tongue and click it at you. Also I have to taste test everything I can get my hands on, oh yeah and those too. ;) But like I said, I feel better than I have in a while. Now we just need to get this other surgery out of the way and then I can start having more of a normal life. Well if you read this, please drop a line and say hi. Love Ayden

Well, Back in the so called saddle again!!

Today was the big day. Mom, Dad, big brother and I got to OHSU at the butt of dawn. We got checked in, and then had to go to the 11th floor. This was were the Cath Lab and recovery room was. I was in the lab from about 12:30 until after 5. Dr. Armsby was very happy with how my pressure & veins looked. Unfortunately, they can't use the left side of my heart, because it still just has not grown like it needed to. SO it looks like the next step is the Glenn procedure or stage two of the Norwood. The good thing about this is that it is not open heart surgery. They go in near my shoulder and don't have to open my sternum up again. Dr. Langley most likely will do this surgery also. This will probably be sometime next month they said. As of right now, I will probably be discharged tomorrow afternoon. Anyways, I am really tired and not happy that I am back in the hospital again, hence the title. Please leave a comment if you read this, I would love to hear from you. Love to all and thank you for the support, Ayden.

The size of a small compact car... Just joking!

Well as of yesterday, I hit the 11 pound mark. I still have two weeks until my procedure, so I will be well on my way to 12 pounds by then. I am just hangin out doin nothing else right now. I have a doc appointment on the 14th and I don't have to go to the docs every week anymore. There is a link to my newspaper article on Doernbecher's website. You can look at the doctor's bio on the Doernbecher website who will be doing my procedure on the 22nd. Her name is Dr. Armsby. Other than that, big brother's birthday is coming up at the end of the month. He will be the big 1-0. I love him very much and couldn't ask for a better big brother. Anyways, gotta go. I have to get my sleep on. Love you all, Ayden.