So far, so good

Well I made it a whole week without any real problems. The only problems I am having is that I am spitting up a bit more because Mom and Dad increased my calories in my formula from 24 to 27, and they are also trying to get me to drink from a bottle, which I don't like. But can you blame me, back when I was first hospitalized, the nurses would give me a pacifier every time they were going to poke me with a needle. So now, I want nothing to do with any kind of rubber nipple. But Mom and Dad are trying to get me to try all kinds of different baby foods, drinks and even a sippee cup. I have a bunch of doctor's appointments coming up and I also have some specialists who are trying help me with bottling and eating, so I am going to be busy. Well here are some pics of me being my cute self. Enjoy them. Love Ayden

Light at the end of a really long tunnel

Well here it is, the news everyone has been waiting for. I am finally going to get discharged, on Tuesday. This has been a slow, slow process and I am finally getting to leave. Dad has been here with me the entire time and Mom, on her days off from work. There is alot of stuff that has to be done, so bear with Mom and Dad about coming to see us. I am still on a slew of meds, I am on a new, strict feeding regiment and I will also be getting help from outside specialists to get me to start drinking from a bottle and even maybe eating some baby food. On a bright note, I rolled over today for the first time. Mommy and Daddy and brother are so proud of me. I am getting to be such a big boy. Here are a few numbers to throw at you.

Total number of hospital days since birth: 127 days (IF I get out tomorrow!)
Total number of days I've been alive: 263 days (Including tomorrow)

That is almost half of my life in the dang hospital. That is 4 holidays, and both of my grandpas birthdays, and two aunts and an uncle's birthdays. Anyways, just thought I would let everyone know how this has affected my life and what was going on. Wish me luck. Love Ayden

I will get home someday :(

So it looks like I have kicked the kylothorax and plural effusion problem (build up of fluid in chest cavity). I should be home sitting in the recliner and watching cartoons with big brother but, obviously I'm not. What is keeping me in the hospital now is my dietary issues. I keep puking up my formula and I'm not gaining weight. The doctors are not comfortable letting me go until I can gain weight. The worst part is daddy got really sick and couldn't take care of me. He was so sick he couldn't keep anything down. Thankfully Aunt Tricia came to my dads rescue and even stayed the night on Tuesday night until mommy could drive up and take care of me. Mommy got here at about 9am on Wednesday morning and sent daddy to Aunt Tricias to get better. In the mean time I have a fever but I don't think its anything serious. I also had whats called a Barium Swallow test they put some stuff in my tummy to watch how it works and they also got me to drink some of the stuff from the bottle. I liked the taste of that stuff it tasted better than my formula. The good news is the test showed that my tummy and intestines are doing great. My esophagus(throat) on the other hand isn't passing the liquid through very quickly it is hanging out in there. This could be a reflux issue so they are increasing my acid reflux medication. They also think I might have a hard time digesting milk protein. I am on yet again a new formula that smells really nasty but I think it might do the trick. Well that's a lot of stuff but we are moving in the right direction. I hope to be home really soon maybe early next week. I miss everyone so much. I will talk to you soon love Ayden.

Slow and Steady... Sort Of

Well, I haven't had anything to really write about for about a week. Christmas was pretty uneventful. Santa came by and I got some cool presents, then after that, it got back to the usual drab. Friday, Grandma and Grandpa and Uncle Garrett and big brother showed up. I was pretty happy to see them. Saturday, Dad took brother and Garrett to the movies and Grandma and Grandpa watched me for a few hours. Later, after they left to go home, Mommy showed up, so I was happy again. Then on Sunday, Aunt Tricia came and saw me. I played with her for while. On Monday, Grandma Sam came up and saw me, and to hang out. She brought more presents for brother and I. On Tuesday, they started me on feeds at 20 ml/hour. Over the course of the day, they increased the feeds up to 25, then 29, and finally 32. I was on that overnight and did fine, but then the next day, I started puking up. This is not abnormal for me, but to be doing it on such a small amount is not necessarily good. The docs have been toying with my feeds and the amount. As far as my vitals go, they look great. If they did not, I would probably be having a relapse of my fluid in the chest. So for now, we just keep at this pace and hope for the best. Happy New Year everyone. Love, Ayden.